Results
Of 51 AYAs who were identified as potential participants, 9 AYAs and 8 caregivers consented and completed an interview between April and September 2022. These 17 participants represented 6 dyads, 1 triad (1 AYA and 2 caregivers) and 2 AYAs without caregiver participation. One interview included more than 1 participant, and the remaining were completed individually with either the AYA or caregiver. Seven interviews were conducted in Spanish and the remaining 10 in English. All AYA participants were at least 18 years at the time of the interview. Table 1 provides additional demographic information on all participants except one Spanish-speaking caregiver. Brief exemplars have been included directly in the text, and Table 2 provides additional thick descriptive quotations.36