Acknowledgements:
The authors thank all the research coordinators and study staff at the
participating institutions for assisting with subject recruitment,
consent, and oversight of regulatory processes. We thank Errine Garnett
(Vanderbilt) for management of the initial Registry development. We also
thank Alicia Hurnton (CHOP) for project management and coordination of
the Registry and Emma Escobar at CHOP for database development and
support. We recognize Dr. Andrea
Heras (Weill Cornell; New York, NY), Dr. Alvin Singh (Children’s Mercy;
Kansas City, MO) and Dr. Matejka Cernelc-Kohan (Rady Children’s,
University of California San Diego, CA) for their administrative
contributions during transitions in study PI at their sites. We also
want to recognize the following sites who have joined the Registry but
had not enrolled subjects prior to this data lock: Children’s Hospital
of Atlanta (Atlanta, Georgia), Helen deVos Children’s Hospital (Grand
Rapids, Michigan), and Children’s Hospital at Montefiore, Albert
Einstein (New York).
We recognize the following additional members of the chILD Registry
collaborative: Emily DeBoer (Colorado), Jenna Bucher (Oregon), Maureen
Dunn (CHOP), Amjad Horani (St. Louis Children’s Hospital, Washington
University), Christin Kuo (Stanford), Sharon McGrath-Morrow (CHOP),
Jennifer Pogoriler (CHOP), David Speilberg (Lurie Children’s), Jonathan
Popler (Children’s Hospital of Atlanta), Kristie Ross (Rainbow Babies
and Children), Timothy Vece (UNC), and Johanna Zea-Hernandez (Helen
DeVos). Lastly, we thank the patients and families with chILD who
inspired this work.