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Piloting a Patient-Driven Online Survey to Better Study Cancer in Adolescents and Young Adults (AYA) in the United States
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  • Lynda Beaupin,
  • Scott Borinstein,
  • Nicholas Yeager,
  • Denise Rotitka ,
  • Jennifer Schweitzer ,
  • Odochi Uwazurike,
  • John Senall,
  • Peter Shaw
Lynda Beaupin
Johns Hopkins All Children's Hospital
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Scott Borinstein
Vanderbilt Children's Hospital
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Nicholas Yeager
Nationwide Childrens Hospital/The Ohio State University College of Medicine
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Denise Rotitka
Roswell Park Cancer Institute
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Jennifer Schweitzer
Roswell Park Cancer Institute
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Odochi Uwazurike
Roswell Park Cancer Institute
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John Senall
Mobile First Media, LLC
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Peter Shaw
Children's Wisconsin

Corresponding Author:[email protected]

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Abstract

Adolescents and young adults (AYAs) with cancer are a unique patient population in oncology. To better understand the current landscape of AYA cancer, an opt-in, secure online survey was offered to a general population of AYA patients and survivors. A 28-item online survey was designed for cancer patients and survivors diagnosed between the ages of 18 and 39 years. 590 patients registered and 447 (76%) completed the survey. This online survey was feasible and can serve as an effective method to survey the AYA cancer population.